Oral Presentation Palliative Care Nurses Australia Conference 2020

Medication-related decision-making for people with advanced dementia living in long-term care: a critical incident analysis using multidisciplinary perspectives (70402)

Domenica Disalvo 1 , Tim Luckett 1 , Alexandra Bennett 2 , Patricia M Davidson 3 , Meera Agar 1 4
  1. IMPACCT – Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, University of Technology Sydney, Ultimo, NSW, Australia
  2. NSW Therapeutic Advisory Group, Sydney, NSW, Australia
  3. School of Nursing, Johns Hopkins University, Maryland, Baltimore, USA
  4. South Western Sydney Clinical School, University of New South Wales, Sydney, NSW, Australia

Introduction: A multidisciplinary approach, whereby an integrated team of professionals from different disciplines and specialties comes together to reach a combined decision on a complex situation, is considered the gold standard for care of people with advanced dementia living in long-term care.

Aim: This study aimed to explore medication-related decision-making by health professionals from different disciplines and specialties caring for people with advanced dementia living in long-term care facilities, focusing on dilemmas associated with starting, continuing or deprescribing medications commonly regarded as potentially inappropriate.

Methods: Four focus groups were undertaken, each on a different medication type (antibiotics, lipid-lowering agents, opioids and anticholinesterase inhibitors). Transcripts underwent qualitative analysis using line by line inductive coding and then a person-centred framework to highlight themes across medication types.

Results: Sixteen participants participated in focus groups. Regardless of medication type or dilemma, results suggested decision-making for residents with advanced dementia should begin with discussing goals of care and engaging with families, and be viewed as an iterative process involving regular monitoring and adjustment. Decision-making was seen as requiring a dialectical approach involving multiple perspectives, with an emphasis on establishing communication between health professionals, family and the person with dementia to better understand goals/preferences for care.

Conclusion: Inter-professional collaboration enables sharing of clinical experience/expertise, differing disciplinary perspectives, and knowledge about the resident. Continuing a medication should be considered an active decision that carries as much responsibility as starting or deprescribing.