6 minute Speed talk Palliative Care Nurses Australia Conference 2020

Community views on ‘What I want ‘Before I Die’ (70324)

Deb Rawlings 1 , Lauren Miller-Lewis 2 , Jennifer J Tieman 1
  1. Flinders University, Adelaide, SA, Australia
  2. School of Health, Medical and Applied Sciences, CQ University, Adelaide Campus, SA, Australia

Introduction

A Massive Open Online Course (MOOC) on death and dying (Dying2Learn) was offered in 2016-2018 for the general public. It included an activity based on the work of Candy Chang, where we asked participants to complete the following: “Before I Die, I want to . . . ”

Aim

To explore the responses to this activity within both MOOCs in an assumed “well” community (i.e., outside the health context).

Methods

The content of participants’ responses to the ‘before I die’ activity from 2016 and 2017 (n = 633) was analysed qualitatively with a coding schema developed and then applied. Ethics approval was obtained.

Results

Respondents were predominantly female (93.3%), with a mean age of 49.75. Most participants resided in Australia (87.5%).

 

Twelve themes emerged from the data in the following order of frequency: family; do an activity; personal aspiration; live life fully, happiness; love; the greater good; peace; legacy; gratitude; religion; and health. Responses could also be distinguished as being inward-facing (about the self), and outward-facing (about others) (Rawlings et al, 2018).

 

Discussion

 

This simple “Before I Die” activity encouraged people to articulate values in their life more consciously, within the context of understanding that life is finite. It is hoped that this is a useful way for people to become more aware of their mortality and to live their life in a way that is congruent with what they consider to be what really matters the most to them in their lifetime.

 

Conclusion

Reflecting on what is important and on what a person wishes to achieve or address before they die can be seen as a companion process to advance care planning which addresses what an individual wants to plan to manage their actual death. The potential of this activity for building death awareness and preparedness, and for understanding the impact on personal well-being are important considerations for future research.

 

 

Reference

Rawlings et al (2018) Community views on what I want ‘Before I Die’. Behav. Sci. 2018, 8, 111.